Department of Social Medicine Index Directions
Home Executive Summary Projects News and Events Educational Activities Academic Programs Research and Training People
(spacer) current archive (spacer)
(shadow image)
 


Helping Control the Spread of AIDS in Vietnam

Teaching Genetics to Medical Students

Socios en Salud

 

 

 

Projects
Socios en Salud

 

The young women were just 18, one raised amid wealth in America, the other amid poverty in Peru.

They united in trying to save the life of a child, and in that battle something else developed. They were teaching each other lessons to live by.

They met in September 1998. Alejandrina Santos Barolo had given birth 14 weeks earlier. Her baby boy had a horrible birth defect, a cleft lip and palate that left him with a hole in his face so disturbing that the young mother was hiding him in their one-room home. Unable to nurse, he was starving to death.

Julie Rosenberg had just arrived in Peru, a recent American high school graduate who was starting a yearlong volunteer project before enrolling at Harvard College. She was walking into a new world, the despair in Santos's one-room home and the community around it.

Rosenberg's first reaction was a sense of helplessness. But she overcame the feeling, and came back the next day, and the days after that. In the end, she found a way to help Santos keep the baby alive, and then to achieve the nearly impossible: allowing him to face the world with confidence.

And Santos, who at first wasn't sure whether she could trust Rosenberg, began telling the story of her life and then started building a life. Along the way, she taught Rosenberg about poverty, illiteracy, domestic violence, and social injustice, not as abstract notions but as forces that had daily meaning.

Rosenberg was working at a Lima-based health care organization, Socios en Salud, which she had heard about from her father, Mark, then a senior official at the Centers for Disease Control in Atlanta. Socios knew about the Santos baby from a worried neighbor. Rosenberg and Jennifer Furin, now a junior resident at Brigham and Women's Hospital in Boston, went to find him one day.

"We were both horrified by what we saw," said Rosenberg, now a sophomore at Harvard. "I remember walking down the hill afterward, feeling almost a sense of panic, trying to figure out what I could do."

The baby, Qleider (pronounced KLY-dehr), couldn't nurse because his cleft lip and palate prevented him from sucking.

The next morning, Rosenberg returned with a baby spoon and a plastic container filled with a smooth paste, a mixture of powdered milk, warm water, and a nutritional cracker. The day after, she came again carrying the same container. This would become her ritual day after day. At 7:30 a.m., Rosenberg would take a bus, hop in a shared taxi, and then walk the steep hill to the Santos home.

"At first he wouldn't eat," Rosenberg said recently from her dorm room in Cambridge. "If we could get one or two spoonfuls in his mouth, it would be a successful day."

The routine continued for several months. There were many difficult moments. Qleider's older brother, Elkim, then 3, often threw temper tantrums. Rosenberg had difficulty communicating in her broken Spanish.

"In the beginning, the days often got harder and harder because Qleider was coming alive to me, and I felt more passionate about seeing him live and really wanting little signs of hope," Rosenberg said.

"The situation with the baby was making the family fall apart in a lot of ways."

Gradually, Qleider took more of the food and slowly gained weight.

"She saved that baby's life," Furin said one day last month as she approached the Santos house. "It's so rare that a human being can actually do something like that, but she did it."

But there was more than that to the visits. Daily, Rosenberg's Spanish improved. And bit by bit, the two women grew close.

"At first, we didn't know what to say to each other," Rosenberg said. "I couldn't understand how someone could be living with a baby so close to dying. But after spending time together, I could see what Alejandrina was going through, and how she ended up in a situation like she did."

Santos also keenly remembers that time. Sitting outside the new corkboard hilltop home she moved into in 1999, which was built with a small grant from Socios, she said she didn't know at first why Rosenberg would be helping her. No one had ever done that. Her husband blamed her for the boy's condition, often stomping out of the house to drink and then returning to beat her. When Rosenberg first came, her husband told her that the American might be plotting to kidnap the baby.

"I was alone in the world," said Santos, whose family lives in a hamlet at the edge of a rain forest, more than a day's trip away. "Sometimes it felt like Julie was my only friend in the whole world. Julie knew all my problems. She kept telling me not to worry."

Together, the two women decided on the next step for Qleider: surgery to correct the boy's cleft lip and palate. It would not be easy. Seventeen times, they took an hourlong minibus trip to a hospital to plead for help. Some days, they waited in line for hours without reaching a doctor. Other times, doctors, exhausted from the steady stream of patients, closed their doors.

Finally, the two women found a doctor who took an interest in Rosenberg. He flirted with the American; she humored him. It worked. The doctor agreed to do the surgery to repair Qleider's lip.

Two more operations followed, one to close the lip a second time after the boy fell and cut it open, and the other to begin to close the palate.

After nearly a year in Peru, Rosenberg returned to the United States and began premed and anthropology studies at Harvard. She kept in touch with Santos through letters, hand-delivered by members of Partners in Health, a nonprofit organization in Cambridge that works in Peru and several other countries.

Last summer, she returned, apprehensive about what she would find. Santos was reinvigorated. She had more confidence, had reconnected with her parents and a sister, had started a small store out of her home, and had even changed her hairstyle.

"She had taken control of everything," Rosenberg said.

And Qleider was running around with children in the neighborhood, the stigma of his cleft lip just a bad memory.

"I realized that Alejandrina and I had connected on a basic human level and we learned that we were more alike than it may have seemed," Rosenberg said. "In a lot of ways, she gave more to me than I gave to her. She kind of opened my mind and showed me how we can get past things that normally block us, like class or race or even languages, and how similar we all are."

There was another lesson, too, said Rosenberg, now 20: "She also taught me a lot about what I want to do with my life, about what's important to me, and what can be done in terms of sticking with something and having a goal and fighting for that."

In Lima, Santos, now 20 as well, looks forward to their next visit, which they hope will be this summer when Rosenberg returns for a month to work on a video on Socios's work there.

"She's going to be Qleider's godmother," said Santos, standing on her hilltop in slacks and a Marblehead T-shirt, a present from Rosenberg. "It's my dream to have Qleider's baptism with Julie because she loves him. And I, too, can't wait for her to come down. We have a lot to talk about."

-Boston Globe, Sunday, March 25, 2001




 

Related Information

Program In Infectious Disease And Social Change

Partners In Health

Multi-Drug Resistant Tuberculosis

Back to top

Home - Executive Summary - Projects - News and Events - Educational Activities
Academic Programs - Research and Training - People - Search - Index - Directions

For questions or revisions to this page, contact the DSM Web Editor